OpportunityTitle: Regional Genetic and Newborn Screening Services Collaboratives: Heritable Disorders Program
AdditionalInformationOnEligibility: Eligible applicants include: (1) a state or a political subdivision of a state; (2) a consortium of two or more states or political subdivisions of states; (3) a territory; (4) a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Service; or (5) any other entity with appropriate expertise in newborn screening, as determined by the Secretary. Applicants that fail to show that they are based within the identified region it will serve and be part of a collaborative network of public health program entities responsible for genetic and/or newborn screening and services in all of the states and U.S. territories within that region will not be considered. In addition, applicants must have significant familiarity and experience with multi-activities within the designated region that show communication and collaboration among: public health and community programs; genetic medicine, primary care and other subspecialty providers; genetic screening and testing laboratorians; and individuals at risk for or affected with heritable disorders and their families. Applicants may NOT apply concurrently for grant funding as the primary applicant for both the National Coordinating Center (HRSA-12-139) and a Regional Genetic and Newborn Screening Service Collaborative (HRSA-12-138). If an applicant does apply for both funding opportunities, both applications will be disqualified.
Description: Each RC will serve effectively as a regional center to: expand and improve newborn screening and genetic services for individuals affected or at risk for heritable disorders and their families; translate genomic medicine into health care delivery systems; and assist states in strengthening their capacity to provide genomic information and services to the public. The RC will continue to undertake a regional approach to address the maldistribution of genetic resources, with focus on reducing disparities among different socioeconomic, racial, ethnic and rural groups. Strategies to address underserved populations include collaboration with other HRSA initiatives, such as MCHB Title V services and other MCHB programs for the hemoglobinopathies, hemophilia and autism, as well as community-based services, medical home implementation, transition for youth and young adults, and health insurance and financing.
GrantorContactEmailDescription: Contact HRSA Call Center at 877-Go4-HRSA/877-464-4772;301-998-7373 or email
GrantorContactText: CallCenter@HRSA.GOV&lt;br/&gt;CallCenter@HRSA.GOV&lt;br/&gt;