OpportunityTitle: Muscular Dystrophy Surveillance Tracking and Research Network [MD STARnet]: Feasibility of Expansion to other Muscular Dystrophies
AdditionalInformationOnEligibility: Only organizations operating as established MD STARnet sites under RFA DD-06-002 or DD-08-002 are eligible to submit an application under this FOA.  These eligible sites include:    1. University of Arizona, College of Medicine,  2. Colorado Department of Public Health and Environment,  3. University of Iowa, College of Medicine,  4. New York State Department of Health, and  5. Hawaii Department of Health.    Existing MD STARnet sites have an established population-based Duchenne/Becker muscular dystrophy surveillance system utilizing a unique protocol and methods to collect longitudinal data on individuals with DBMD, and provide the basis for this expansion demonstration effort.  Limiting eligibility to these sites enables the continuation of longitudinal data collection on over 700 individuals with DBMD and for efficient expansion of data collection to other muscular dystrophies.
Description: This funding opportunity announcement (FOA) has two components (A and B). CDC solicits UO1 grant applications to support Component A Core - to characterize the population of individuals who have muscular dystrophies through modification and expansion of MD STARnet. The ultimate goal is to improve access to care and the health of individuals with muscular dystrophies (MDs). All eligible applicants for component A may also apply for Component B &#150; Enhanced Activities (1. Data Coordinating Center (DCC); 2. Abstractor training and quality assurance/control activities; 3. National coordinating center; and 4. Georgia healthcare transitions interview) to support ongoing MD STARnet activities.
GrantorContactEmailDescription: general email
GrantorContactText: Centers for Disease Control and Prevention (CDC) &lt;br/&gt;Procurement and Grants Office (PGO) &lt;br/&gt;Technical Information and Managment Section (TIMS) &lt;br/&gt;Phone 770-488-2700
CloseDateExplanation: On-time submission requires that electronic applications be error-free and made available to CDC for processing from eRA Commons on or before the deadline date. Applications must be submitted to and validated successfully by Grants.gov/eRA Commons no later than 5:00 PM Eastern Time.  Note:  HHS/CDC grant submission procedures do not provide a period of time beyond the application due date to correct any error or warning notices of noncompliance with application instructions that are identified by Grants.gov or eRA systems (i.e., error correction window).