OpportunityTitle: Pilot for State-specific Cross-Sectional Surveillance of Persons with Rare Disorders and Longitudinal Assessment of Outcomes
Description: This funding opportunity announcement (FOA) has two objectives. For both Objectives 1 and 2 CDC solicits U01 cooperative agreement applications to investigate factors that influence well-being for young adults (ages 15-24 years) with rare disorders in three key domains (health, education or work, and social participation). Such investigations are needed for states&#146; cross-sectional surveillance efforts to document the outcomes and service use of these young adults (Objective 1). For this FOA, CDC will consider spina bifida, muscular dystrophy, and fragile x syndrome as prototypes of rare disorders. Through retrospective, longitudinal observation, these investigations may generate reasons for suboptimal outcomes among some of these young adults (Objective 2) and point the way toward changes that can improve the well-being of future young adults.
GrantorContactEmailDescription: General Email
GrantorContactText: Centers for Disease Control and Prevention (CDC) &lt;br/&gt;Procurement and Grants Office (PGO) &lt;br/&gt;Technical Information and Management Section (TIMS) &lt;br/&gt;Phone 770-488-2700
CloseDateExplanation: and made available to CDC for processing from eRA Commons on or before the deadline date. Applications must be submitted to and validated successfully by Grants.gov/eRA Commons no later than 5:00 PM Eastern Time. Note:  HHS/CDC grant submission procedures do not provide a period of time beyond the application due date to correct any error or warning notices of noncompliance with application instructions that are identified by Grants.gov or eRA systems (i.e., error correction window).