OpportunityTitle: National Spina Bifida Patient Registry - Clinic Demonstration Project (U01)
AdditionalInformationOnEligibility: You may submit an application(s) if your organization has any of the following characteristics:   &#149; Public nonprofit organizations  &#149; Private nonprofit organizations  &#149; For profit organizations  &#149; Small, minority, and women-owned businesses  &#149; Universities  &#149; Colleges  &#149; Research institutions  &#149; Hospitals  &#149; Community-based organizations  &#149; Faith-based organizations  &#149; Federally recognized or state-recognized American Indian/Alaska Native tribal governments  &#149; American Indian/Alaska Native tribally designated organizations  &#149; Alaska Native health corporations  &#149; Urban Indian health organizations  &#149; Tribal epidemiology centers  &#149; State and local governments or their Bona Fide Agents (this includes the District of Columbia, the Commonwealth of Puerto Rico, the Virgin Islands, the Commonwealth of the Northern Marianna Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau)  &#149; Political subdivisions of States (in consultation with States)    A Bona Fide Agent is an agency/organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application.  If you are applying as a bona fide agent of a state or local government, you must provide a letter from the state or local government as documentation of your status.  Attach this documentation behind the first page of your application form or for electronic applications, use a PDF file and attach as &#147;Other Documents&#148; and label as appropriate.
Description: The National Center on Birth Defects and Developmental Disabilities (NCBDDD) of CDC within HHS is committed to achieving the health promotion and disease prevention objectives of &quot;Healthy People 2010&quot; and to measuring program performance as stipulated by the Government Performance and Review Act (GPRA). This RFA addresses &#147;Healthy People 2010&#148; priority area(s) of Disability and Secondary Conditions; Maternal, Infant, and Child Health; and to Prevent Birth Defects and Developmental Disabilities, and is in alignment with NCBDDD performance goal(s): Disability and Secondary Conditions; Maternal, Infant, and Child Health; and to Prevent Birth Defects and Developmental Disabilities. For more information, www.healthypeople.gov. and http://www.whitehouse.gov/omb/mgmt-gpra/. Nature of the Research Opportunity This FOA will support spina bifida clinics in the United States to participate in the National Spina Bifida Patient Registry (NSBPR) using a standardized registry tool. Clinics will: collect data on patients affected by spina bifida; submit data to a central repository; participate in the data analysis; propose improvements and additions to the registry data collection methods and process; and propose changes to clinical practice aimed to improve the quality of care of persons living with spina bifida.
GrantorContactEmailDescription: pgotim@cdc.gov
GrantorContactText: CDC Procurement and Grants Office &lt;br/&gt;Phone 770-488-2700