OpportunityTitle: Genetic Services - Grants to Support Comprehensive Medical Care for Cooley&apos;s Anemia/Thalassemia
AdditionalInformationOnEligibility: As cited in 42 CFR part 51a.3 (a), any public or private entity, including an Indian tribe or tribal organization (as those terms are defined at 25 U.S.C. 450b), and a faith based and community based organization, is eligible to apply for this Federal funding.    Applicants must demonstrate no less than 5 years of cummulative experience in providing a system of comprehensive care and medical management for individuals and families at risk for or affected by Cooley&apos;s Anemia/Thalassemia.
Description: The purpose of this grant activity is to fund up to three projects that will support the demonstration of a model system of comprehensive care and medical management for individuals and families at risk or affected by Thalassemia. Such model should involve a complex network of services ranging from screening, diagnosis, counseling, education, and psychosocial services to specialized medical care including regular red blood cell transfusions and the monitoring, prevention, and treatment of iron overload resulting from repeated transfusions. Thalassemia is a group of genetic blood disorders; two of the most severe of these are Beta Thalassemia Major and Alpha Thalassemia Major. Both alpha thalassemia and beta thalassemia occur predominantly among individuals of African, Asian, Mediterranean, and Middle Eastern descent.
GrantorContactEmailDescription: Contact HRSA Call Center at 877-Go4-HRSA (877-464-4772);301-998-7373 or email
GrantorContactText: CallCenter@HRSA.GOV&lt;br/&gt;CallCenter@HRSA.GOV&lt;br/&gt;