OpportunityTitle: Promoting Education and Outreach of Persons with Hereditary Blood Disorders: Identifying Patients with Diamond Blackfan Anemia
AdditionalInformationOnEligibility: Eligible applicants that can apply for this funding opportunity are listed below:   &#149; Nonprofit with 501C3 IRS status (other than institution of higher education)  &#149; Nonprofit without 501C3 IRS status (other than institution of higher education)  &#149; For-profit organizations (other than small business)  &#149; Small, minority, and women-owned businesses  &#149; Universities  &#149; Colleges  &#149; Research institutions  &#149; Hospitals  &#149; Community-based organizations  &#149; Faith-based organizations  &#149; Federally recognized or state-recognized American Indian/Alaska Native tribal governments  &#149; American Indian/Alaska native tribally designated organizations  &#149; Alaska Native health corporations  &#149; Urban Indian health organizations  &#149; Tribal epidemiology centers  &#149; State and local governments or their Bona Fide Agents (this includes the District of Columbia, the Commonwealth of Puerto Rico, the Virgin Islands, the Commonwealth of the Northern Marianna Islands, American Samoa, Guam, the Federated States of Micronesia, the Republic of the Marshall Islands, and the Republic of Palau)  &#149; Political subdivisions of States (in consultation with States)  &#149; Other (specify)  A Bona Fide Agent is an agency/organization identified by the state as eligible to submit an application under the state eligibility in lieu of a state application.  If applying as a bona fide agent of a state or local government, a letter from the state or local government as documentation of the status is required.  Attach with &#147;Other Attachment Forms&#148; when submitting via www.grants.gov.
Description: The purpose of this program is twofold. The purpose of module A is to enhance the understanding of the phenotype of Diamond Blackfan Anemia patients and to educate the physicians that are caring for them. By understanding more about this disease, clinicians will be able to make more accurate diagnoses and patients will be treated more appropriately. Additionally, the information gained from a surveillance of DBA patients may be extended to enhance the knowledge of other health fields, such as birth defects and pediatric cancer.
GrantorContactEmailDescription: PGO Technical Information Management
GrantorContactText: CDC Procurement and Grants Office &lt;br/&gt;Technical Information Management Section &lt;br/&gt;Phone 770-488-2700