OpportunityTitle: The Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)
AdditionalInformationOnEligibility: For an applicant to be considered they must be responsive to the information here.  Component A &amp;ndash; Core-Current:  Applicants must document current funding under RFA DD-14-001 Surveillance and Research of Muscular Dystrophies and Neuromuscular Disorders.    Component B &amp;ndash; Core-New:  Applicants must propose a study site that should be a specific geographic area with a population of at least 3 million people including a large minority population (e.g. African American, Asian, or Hispanic).    Component C &amp;ndash; Enhanced-Dissemination:   Applicants must submit an application for Component A to apply for Component C. To be funded for Component C, the applicant must also be funded for Component A. Applicants should document that they have applied for Component A.    Component D &amp;ndash; Enhanced-DCC:  Applicants must submit an application for Component A or B to apply for Component D. To be funded for Component D, the applicant must also be funded for Component A or B. Applicants should document that they have applied for Component A or B.    Component E &amp;ndash; Enhanced-Abstractor:  Applicants must submit an application for Component A to apply for Component E. To be funded for Component E, the applicant must also be funded for Component A. Applicants should document that they have applied for Component A.    If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter the review process.
Description: The purpose of this NOFO is to better understand the public health and clinical impacts of living with MD by conducting longitudinal, population-based surveillance and research of eligible MDs (DMD, BMD, DM, FSHD, LGMD, CMD, EDMD, OPMD, and Distal MD). The current cycle will focus on identifying eligible MD cases, conducting longitudinal follow-up and research, analyzing data, and publishing and disseminating the results. Current MD STARnet sites will collect data to estimate prevalence and survival and additional clinical data on existing MD cohorts. New MD STARnet sites will focus on identifying eligible MD cases and collecting data to estimate prevalence, survival and track key clinical indicators. Identification of cases through population-based surveillance will enable existing and new sites to conduct research on these populations. This information is expected to advance understanding of diagnosed prevalence, disease progression and survival; clinical care and interventions and their alignment with recommended care; disparities in access to care; the association of treatment with outcomes, and the impact of MD on the lives of affected individuals and their families.
GrantorContactEmailDescription: Grants Policy
GrantorContactText: Marcella Law&lt;br/&gt;mah7@cdc.gov
CloseDateExplanation: Electronically submitted applications must be submitted no later than 5:00 p.m., ET, on the listed application due date.